The Jay C Trust
Charity 1195953
Overview
Summary
The Jay C Trust appears to occupy a focused, practical role in the glioblastoma support landscape: translating a family-led experience of illness into flexible financial and emotional support for people whose needs may fall between clinical care and ordinary household resources. Its stated England-and-Wales grant remit, combined with an Epsom base and a corporate sponsor, suggests a small specialist charity seeking national relevance while retaining a personal, relationship-centred identity.
Operational geography
Coverage: National
Operational areas:
Evidence and reasoning
Supporting evidence
Remaining uncertainties
- The Charity Commission currently records the charity as operating in Birmingham City and Surrey, but does not identify any Birmingham ward, venue, service location or beneficiary catchment within Birmingham.
- The charity's website states that it provides grants to individuals in England and Wales. This supports a national grant-making reach, but does not show that services are delivered from, or routinely delivered within, a particular Birmingham neighbourhood or district.
- The 2023 trustees' report records fundraising and awareness events in Birmingham and Birmingham-based sponsors, but this is historical evidence and does not establish a current physical site or continuing programme at a specified Birmingham location.
- No evidence identifies a current Birmingham office, owned or leased property, regular support group, clinical partner, or grant-recipient distribution by ward. The Charity Commission states that the charity does not own or lease land or property.
Additional evidence needed
- A current annual report or impact report identifying where grants have been awarded, referrals received, or awareness activity delivered in Birmingham.
- Current details of any Birmingham hospitals, GP surgeries, hospices or other organisations with which the charity actively liaises or has formal referral arrangements.
- Confirmation of any current Birmingham event venues, recurring support activity, staff or trustee-led operational bases, explicitly identifying a listed ward or recognised place.
Areas of work
- General Charitable Purposes
Who they help
- The General Public/mankind
How they help
- Makes Grants To Individuals
- Other Charitable Activities
- Provides Advocacy/advice/information
Discoveries involving this organisation
The Atlas has not published any Discoveries involving this organisation yet.
Observations
It addresses the non-clinical cost of a clinical crisis
The Trust appears designed to relieve pressures that treatment systems may not routinely meet, including personal care, home adaptations, respite, breaks and other unaffordable items or services. Its grants may therefore function as a bridge between medical need, family capacity and financial reality.
Why it matters
This clarifies that the organisation's distinctive contribution is not tumour treatment itself, but helping families sustain care, wellbeing and time together during an exceptionally demanding illness.
Show evidence
“The CIO may make grants for personal care, equipment, home adaptations, respite care and breaks for people with glioblastoma, their families and carers.”
Source:Charity Commission“The Trust aims to ease burdens placed upon families during extreme mental and physical suffering.”
Source:Organisation
Carers are treated as beneficiaries, not only supporters
The Trust appears to recognise glioblastoma as a condition affecting an entire care network. Its model includes families and carers directly, rather than framing them solely as people assisting the patient.
Why it matters
This may make the Trust particularly relevant where caregiver strain, financial insecurity and emotional distress threaten a family's ability to cope, even when a patient's clinical care is in place.
Show evidence
“The objects include relieving hardship and assisting the treatment, care and wellbeing of people with glioblastoma, their families and carers.”
Source:Charity Commission“The Trust states that caregivers face the challenges of a glioblastoma diagnosis every step of the way with their loved ones.”
Source:Organisation
A personal origin may be central to its operating ethos
Founded in memory of Jayesh Chauhan, the Trust appears to derive its approach from lived experience of having strong family support during illness. This may explain its emphasis on empathy, individual grants and preventing isolation.
Why it matters
Understanding this origin helps distinguish the Trust from a generic grant-maker: its apparent value proposition is compassionate, experience-informed support for people without an equivalent personal network.
Show evidence
“The Trust was formed in loving memory of Jayesh Chauhan.”
Source:Organisation“Jayesh Chauhan had family and friends around him who supported him, and the Trust states that not everyone will have this support.”
Source:Organisation
- How many grants are made, their typical value and how quickly support reaches applicants.
- Whether the Trust works with hospitals, brain tumour charities, social workers or local advice services.
- Which groups across England and Wales are currently reached or underrepresented.
Remaining uncertainties
- Grant data showing demand, awards, geography, unmet need and reasons for declined applications.
- Information on referral pathways, partnerships and how beneficiaries access support.
Additional evidence needed
Charity Commission profile
Activities
To support families and those affected by Glioblastoma
Charity objects
THE OBJECTS OF THE CIO ARE: (1) TO RELIEVE THE FINANCIAL HARDSHIP OF PEOPLE WITH GLIOBLASTOMA, THEIR FAMILIES AND CARERS BY MAKING GRANTS OF MONEY FOR PROVIDING OR PAYING FOR ITEMS, SERVICES OR FACILITIES WHICH THEY COULD NOT OTHERWISE AFFORD THROUGH A LACK OF MEANS. (2) FOR THE PUBLIC BENEFIT, THE RELIEF OF SICKNESS AND TO ASSIST IN THE TREATMENT, CARE AND WELL-BEING OF PEOPLE WITH GLIOBLASTOMA, THEIR FAMILIES AND CARERS, IN PARTICULAR BUT NOT EXCLUSIVELY BY: (A) PROVIDING INFORMATION ABOUT GLIOBLASTOMA AND WHERE PRACTICAL HELP AND SUPPORT CAN BE FOUND; (B) PROVIDING OR ASSISTING IN THE PROVISION OF PRACTICAL HELP, ADVICE AND SUPPORT; (C) MAKING GRANTS TO: - PAY FOR PERSONAL CARE, EQUIPMENT AND HOME ADAPTATIONS FOR PEOPLE WITH GLIOBLASTOMA; - PAY FOR RESPITE CARE AND BREAKS FOR PEOPLE WITH GLIOBLASTOMA, THEIR FAMILIES AND CARERS.